Another Eva Update...

Well, here we are! Day 3 has just completed and we approach the beginning of day 4. Praising God that she is still here w/ us. I have been asking God to give us more time as well as specifics and we are being blessed w/ both.

The specifics today were for Eva to have an easy insertion of a new central line and an easy transition from the vent to c-pap to cannula. All were answered prayers.

We had Eva dedicated by our pastor and could feel God's presence in all that we faced throughout the entire day.

Our reason for these transitions was because we were trying to leave the hospital to go into the transitional care home in our area for hospice type care, before attempting to make it home. The TIC home will not take a patient on a vent nor c-pap because they do not have the equipment to support such. So we had to attempt to get Eva weaned from the vent to the c-pap to a high pressure cannula as our wishes were to be out of the hospital setting hopefully before Easter. We were unsure how she would do w/ these transitions and were not in a hurry to get where we wanted her but did want our preferred doctor to be here with us.

Originally we were told that we could get to the TIC today if Eva did well enough to be transported. Then, we find out that they want patients to be off of vents for 2 days before the switch! This was a surprise. They then said that they would take her tomorrow morning (Friday) instead of waiting an entire two days. So again, we were given more time and never felt rushed. But we did want to get Eva to the cannula today and not wait until morning in case TIC wanted to again lay down any unforeseen rules.

Eva went from the vent to the c-pap to the cannula very smoothly. And all w/in a few hours w/ our neonatologist present the entire time (who gave me her cell # before she left). Eva is still doing pretty well on the cannula and it is now 12:30am. Mya was able to hold her again and Dominic was able to get as close as he wanted. So nice to see her w/ less on and in her, to enjoy seeing her precious little face.

I sat and talked to her, sang to her and prayed with her for a long time tonight. I was able to discuss the possibility of her going to heaven very soon w/ both kids and explained to them the ticket on how to get there to see her again. Both are saved and had asked the Lord to be their Savior at separate times. Times that I wasn't even aware of until well after the fact but oh how thankful I am that they took that step and on their own at that! I also made them well aware of who is in Heaven waiting for Eva...from Vinnie's Mom to the many many others, so many to list (listing anyways...Molly, Eliot , Claire , Isaac, Madeline , Miller Grace, Copeland , Jonathan, Poppy Joy , Isabella , Tristan , Mary Grace , Maddox , Asher , Joshua ). Both Dominic and Mya of course cried which makes me weak but both understood what I was saying. And both left here tonight w/ specifics that they wanted to pray for.

(Saturday the 22nd marks 18 years since Vinnie's Mom passed. Eva's middle name is Janette because of her grandma Janet waiting in Heaven for her...making Eva's initials EJ for Vinnie's best friend EJ who passed at the mere age of 18. Are these coincidences? 18 and 18? Will grandma Janet be waiting Saturday w/ open arms to hold her granddaughter? The first of her four grandchildren that she will meet?)

We are praying that Eva stays stable throughout the night and is able to go to TIC in the morning. We are praying for the big things, for God to fix them (since he is the Ultimate Physician) like her heart and her lungs. And for her intestines. To remove the blockage, allow it to pass and/or extend the narrowing. This will allow us to feed her w/out causing a bigger problem. She is not starving, she is on IV nutrients. I made sure of this! But oh how I would live to tube feed her. To allow her to gain some weight and possibly allow her to progress the way that only she can.

The nurses are amazed at the supply of milk I have coming in and I barely pumped as I just didn't feel like it some of the time. They have joked the I have enough to feed the entire floor! I feel it for sure. I am trying to pump less in case I have to wean myself sooner than later but I never assumed that we wouldn't get her to feed so I have the beginning milk if and when she is ready for it.

Please stand w/ us in prayer for those specifics. I have asked for so much and have been blessed w/ so much. Why stop now? I serve a God of more than enough and he continues to shower us w/ just that. I won't quit now.